tag:blogger.com,1999:blog-4253523068752920615.post9175918155978230584..comments2023-05-03T06:27:02.235-05:00Comments on I CAN’T HEAR YOU IN THE DARK:: Vanderbilt Image-Guided Mapping Test ResultsJenniferhttp://www.blogger.com/profile/10649007194044098187noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4253523068752920615.post-22072514923327277342013-04-29T15:47:00.264-05:002013-04-29T15:47:00.264-05:00Today Is The WHEN I will get this mapping. THis is...Today Is The WHEN I will get this mapping. THis is the end of April !!! What's Now ? <br /><br />Rick Anonymoushttps://www.blogger.com/profile/00399309697739814751noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-54097530089086500262013-04-19T13:00:18.007-05:002013-04-19T13:00:18.007-05:00Prelinguals means born deaf :-)
Audiologist w...Prelinguals means born deaf :-) <br /><br /> Audiologist would turn off over 70 percent of electrode arrays for pre-lings > I hope I am dead wrong... <br /><br />Anonymoushttps://www.blogger.com/profile/00399309697739814751noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-51207166549611622392013-04-19T09:30:20.484-05:002013-04-19T09:30:20.484-05:00If by prelingual, you mean born-deaf, I hope to ad...If by prelingual, you mean born-deaf, I hope to add my story!Catherinehttps://www.blogger.com/profile/00449802611842835823noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-76520721907155632322013-04-19T08:40:58.992-05:002013-04-19T08:40:58.992-05:00Is there any success story upon prelinguals upon t...Is there any success story upon prelinguals upon this image guided mapping study ? Anonymoushttps://www.blogger.com/profile/00399309697739814751noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-84790248082549926152013-04-12T11:55:52.694-05:002013-04-12T11:55:52.694-05:00Jennifer, I saw that you posted yesterday, but wan...Jennifer, I saw that you posted yesterday, but wanted to wait until I had time to read it with a clear head. And of course I just slurped it up! I have been busy with work, and gardening, and haven't even written to the email address you made available here, and feeling somewhat guilty about it, but I did want to write a really good email. So I was glad to read that it is likely this program will be made available to everyone soon! Thanks again for your informative posts, you write clearly and well! <br />I did want to add my regrets for your recurring bouts with Meniere's. I have it but usually it is momentary. I just hope that one result of this new program will result in fewer and fewer bouts. <br />Thank you again for your posting. They say the best things in life are free? :)Catherinehttps://www.blogger.com/profile/00449802611842835823noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-76095444033430361142013-04-12T07:24:42.492-05:002013-04-12T07:24:42.492-05:00Jen, you are providing an incredible service infor...Jen, you are providing an incredible service informing us of your experiences. Congratulations on your success, and thank you for sharing. Each time I learn from you, I feel an increased sense of hope for the future (even though I'd absolutely LOVE, LOVE, LOVE for Vanderbilt to contact me NOW). <br /><br />I identified with the hearing experiences you pointed out-- mainly, being able to generally hear males much easier than females, but also the experience of hearing great one minute, and then experiencing distortion the next without warning and without explanation. Your story makes me feel as though someone out there understands this frustration, and that, in itself, is very comforting.<br /><br />Thank you Jen, and thank you Vanderbilt! This study is HUGE. Anonymoushttps://www.blogger.com/profile/06328698007092036108noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-63505602739173937272013-04-11T22:34:18.112-05:002013-04-11T22:34:18.112-05:00Thanks so much for your latest post, Jen. It is so...Thanks so much for your latest post, Jen. It is so exciting that you are getting better results with this new strategy. I am very happy for you and so grateful that you are sharing your impressions. <br /><br />Having your hearing take a nosedive earlier in the week must have been frightening. I do not have Meniere's, but I sure hope that research will lead to better treatments for it.<br /><br />I think what excites me most about the Vanderbilt study is that, as far as I know, this is the first major study focused on improved mapping for all CIs, regardless of manufacturer. I think this is huge, and Vanderbilt (and its financial sponsors) should be commended for that.<br /><br />For those of us who have experienced struggles with sound-quality issues, this is a huge development. I realize that it's not likely to help everyone. But what surprised me most about my post-surgery experience was that when I had results that fell short of pre-op expectations, the industry didn't seem to care. I hasten to add that my surgeon was sympathetic and uber audi Jayce Wolfe in Oklahoma City volunteered many, many hours trying to help me, out of sheer kindness. But I got the distinct impression that the CI manufacturers' focus is on improving their market share rather than worrying about the 5 to 10 percent of patients (or whatever the number is) whose results were below expectations.<br /><br />I hope I'm not coming across as negative. I DO appreciate that I hear significantly better with my CI than I did with HAs! It is just super exciting that there may be yet more improvement on the horizon.<br />Annhttps://www.blogger.com/profile/17765926213505514843noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-20332632253923304522013-04-11T11:55:11.404-05:002013-04-11T11:55:11.404-05:00I have no idea what the process will involve. Sinc...I have no idea what the process will involve. Since this is a strategy that doesn't require anything except a CT scan and turning off electrodes, I'm not sure it will require FDA approval. I have this program on my first and second slots with seven electrodes turned off, and then I have Hi-Res 120 with all 16 electrodes turned on and running on my third program. It's not a "program", per se, so much as it's an adjustment, simply turning off electrodes. All other adjustments are made normally. That's why it will work with all brands. I don't know what kind of regulation will be required before it's available across the board. Jenniferhttps://www.blogger.com/profile/10649007194044098187noreply@blogger.comtag:blogger.com,1999:blog-4253523068752920615.post-24135513090040124392013-04-11T11:48:48.413-05:002013-04-11T11:48:48.413-05:00Sounds like you're really making awesome progr...Sounds like you're really making awesome progress. Congrats!<br /><br />You made it a point to mention that it could be available to every implant brand. Does that mean its been approved by the FDA or will it have to go through the process?Samhttps://www.blogger.com/profile/00719839672819338257noreply@blogger.com